Hi! My name is Sarah Katherine, but my friends call me Suki.

I am 11 years old, and I have Rett Syndrome. I may not look like it, but I understand EVERYTHING. I cannot speak, but please stop and look into my EYES. Hear what I’m saying, for eyes speak LOUDER than my voice ever will. If you let me in, I will teach you so much about life. I will TEACH you about hope, faith and most importantly LOVE. I will remind you that miracles are all around you and one of them is ME! So, don’t underestimate me, I’m changing the world, one SMILE at a time.

Sarah Katherine Bateh Endowed Professorship in Rett Syndrome


A few words from Dr. Percy

The Rett syndrome (RTT) clinical research program at COA and UAB continues to be at the forefront of efforts to understand this unique disorder and provide assurance of clinical trial readiness even under the unexpected difficulties related to the current viral pandemic. We continue to provide active care for individuals and their families with RTT, even though in some instances this has necessitated telemedicine and other remote assessment capabilities for families who would have to travel long distances to be seen. We continue to provide support both locally and throughout the US, even occasionally responding to requests from international sites. We have been extremely fortunate to have Dr. Amitha Ananth, a pediatric neurologist and geneticist, engage with us over the past three years. More recently, Dr. Emily Gantz, also a pediatric neurologist at COA and UAB, has joined us to enhance these capabilities. As we engage in an increasing number of treatment trials seeking to provide improvements in RTT, we must ensure strong nursing and physician involvement in these critically important endeavors. As such, it has become even more important to stimulate financial support for maintaining and expanding these services. Only in this way can we expect to offer the best opportunities for improving the lives of those affected by this severe neurodevelopmental disorder and that of their families who must deal with the multiple difficult concerns on a never-ending basis.

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Press Release

7-year-old Suki Bateh inspires UAB and Children’s to create Sarah Katherine Bateh Endowed Professorship in Rett Syndrome

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Press Release

Rett Syndrome Advocacy Group Recognizes Children's/UAB as Center of Excellence

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Rett Syndrome Advocacy Group Recognizes Children's/UAB as Center of Excellence

Join us in the fight against Rett Syndrome

International Rett Syndrome Foundation Children's of Alabama
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